I SPEND MY LIFE TRAPPED IN MY BED
BUT I REFUSE TO LET IT GET THE BEST OF ME
It all started when...
I was 31 years old. I was happy, independent, and running my own succeessful small business restoring vintage furniture. Things weren't perfect, but they were pretty dang good. I lived on a beautiful artist's ranch in Tucson, Arizona and I loved it.
One day I couldn't move my head, or get up or down from the couch or bed. I couldn't reach up to grab something from the cabinet. My dad was in town, and he was shocked. He'd never seen me with my back 'out.'
I went to the Dr, and they did a full spine MRI. On an average sunny day in Tucson, Arizona, I got the shock of my life - half of my spine was herniated. 11 discs - GONE. This wasn't something I'd heal from, 'get over,' or fix. Dr's don't generally fuse HALF of a spine. It was then, that day in Dr Brown's office, my primary care Dr, that I knew my life was forever changed. I, was disabled.
And just like that, I lost my business, my health, my independence - everything.
Three years later I'd get an even bigger surprise. I got another MRI, and it showed that I'd lost 'virtually all CSF' in my cervical spine.. It literally said that on my MRI report. And based on the health I'd been having, and what prompted the MRI, we'd come to find out that I had a CSF leak, Intracranial Hypertension, Glaucoma, POTS, and, the disorder that caused it all? Ehlers Danlos Syndrome. A rare, genetic disorder that Drs had missed since I was an infant and first showing signs. I'd been misdiagnosed for over THIRTY years.
Man, I wish I would've known that I had this. I could've taken it easier on my body, I wouldn't have taken a job lifting 50-100 lbs repeatedly, all day long. I wouldn't have opened a FREAKING FURNITURE BUSINESS! I mean, really.
But what can you do? I didn't know. I thought all of my injuries were normal enough and all the Drs said I was 'fine.' Welp. I wasn't.
And that's how I ended up in flat in bed, for 22 hours of everyday, since 2014.